Monday, 25 March 2013

I miss...


I miss:

Walking

Showers alone

Standing up

Washing my own face & body

Stretching

Being able to go inside the dwellings of family & friends

My family visiting me without pain on their faces

Putting on my own clothes & makeup

Sleeping in the same bed as my lover

Initiating affection & support without having to ask the person to help me hug them

Cooking , cleaning laundry, dishes

Being alone

Privacy

The ability to go outside and sit in the yard, go for a walk, shopping, eat out, leave the house without planning

Spontaneity

Being able to move around comfortably in a small space

Stairs - especially because the lift I use scares the shit out of me. I don't like heights & I do have nightmares about it plummeting to the bottom

Not being depressed.

Rarely taking pills

Being naked for no particular reason

Wearing a robe - I used to have a nice silk one

Organizing my own crap

The days when I could think of this disease as a condition & the effects wouldn't be real until far in the future

Not worrying about how close I am following the special diet

Being unafraid of carbohydrates. I feel like every gram I eat is going to help kill my muscles faster

Eating carbs without feeling like a bad person

School - I adored university & will forever regret I did not even get a degree when I planned to get a PhD

Scratching itchy spots

Playing with my pets & being able to make them behave

Being warm in normal temperatures

Gardening

Sitting on the couch

Sitting without pain

Traveling

Dancing

People not staring at me

Having a job

Having energy

Sleeping less than 10 to 12  hours. Also mornings.

Being able to reach the floor or a spot more than a few inches in front of me



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